I have Parkinsonís disease. How do I get into your program?
If you have been diagnosed with Parkinsonís disease or another movement disorder, you may call MDRC to have your name put on a waiting list for a time when the Centre is bringing in new people. At that time, you will be called to come in for a full assessment with Dr. Almeida and some baseline testing with students. You will be asked to complete some forms which will be kept on file and held in strict confidence. The database of participants is used by students to randomly select participants who qualify to be called for their study.
How often do I have to come in?
When you get a call regarding a study, the student will explain what their test will involve and how long it will take. It may be a one-time visit for one hour or an eight or twelve week program coming in three times a week. It is up to you to decide whether or not you want to participate in the study or wait for another one. The student will work with you to find a mutually convenient time to book your appointment.
Can I get an appointment with Dr. Almeida?
MDRC is research based and not clinical; therefore, Dr. Almeida assesses participants mainly when it is connected to a studentís specific research study. Unfortunately, he is not available to book appointments for general interest or consultation purposes.
What exercises should I do to help with my Parkinsonís?
Exercise of any kind is always (within your physical capabilities and with your doctorís permission.) The PD SAFEx program developed at MDRC is designed specifically to work on symptoms of Parkinsonís disease and to help lessen the effects of those symptoms. Studies have shown that the PD SAFEx program was the most effective for PD symptoms over other exercise programs such as aquatic, strength and aerobic.
Is there anywhere else I can go to be in an exercise program?
At this time, the PD SAFEx program is not in the community. There are plans underway with the local YMCAís to have it available with trained instructors so that more people can access the program.
What do you do with the results of your testing?
Once students complete a study, they put together their conclusions and write a paper. This paper may be submitted to a variety of publications. Students also submit to international conferences where they may be accepted to give a verbal or a poster presentation.
I donít have Parkinsonís but I realize that the work you do is extremely valuable. Is there anything I can do to help?
Yes. There are several ways you can help.
1) We keep a list of "Healthy Adults" who do not have Parkinsonís but are willing to come in to be tested. The tests would be the same as the Parkinsonís participant takes but the results are compared Ė using age and gender matches as closely as possible. Because of this, it is very important for us to have a variety of people in our database to contact.
2) Take part in fundraising activities such as the annual "Laurier Loop" in September and the Charity Golf Tournament
3) Financially - donate to MDRC
- name MDRC as a memorial gift recipient
- add MDRC to your will
4) Equipment - contact MDRC for their "wish list" and donate an item (i.e. research equipment)